Dear Chapter Friend,
This one time each year, we ask you to help support the many care-related services that our chapter
provides to families with Huntington’s disease in Northern California.
We all agree that funding research is important as it’s the way to find a treatment or cure for this
tough disease, but it’s the family services that help HD families, right now, while we’re on this
difficult journey waiting for the cure.
For more information about how important your donations are to us.
Please Help HDSA Northern California by making a Donation
A note from the chapter president Judy Roberson:
It's so hopeful for me to follow the happenings at the UC Davis Stem Cell Program. Director, Jan Nolta, PhD, is doing research on Huntington's disease and preparing for a future clinical trial using adult stem cells called MSCs. The GMP Facility has just been completed inside the UC Davis Institute for Regenerative Cures building on the UC Davis Sacramento campus. GMP stands for Good Manufacturing Practices; this facility is the only GMP located in Northern California. Under the direction of Dr. Gerhard Bauer, FDA-grade stem cells will be produced to treat diseases in humans. Learn more about it by clicking on the link below.
http://www.ucdmc.ucdavis.edu/stemcellresearch/
Hdsa Advocacy
Nearly everyone affected by HD has trouble obtaining disability benefits. HDSA is leading a national campaign to address this problem, and we need your help!
A bill in Congress, HR 678, The Huntington’s Disease Parity Act of 2009 would revise the current Social Security Administration (SSA) guidelines for determining disability caused by HD. It would also eliminate the two-year waiting period to receive Medicare benefits after a disability determination is made by SSA. If enacted into law, HR 678 would significantly improve the lives of everyone affected by HD.